Discover the Science of Health
Francis Collins, Director of the National Institutes of Health (NIH), said last month that he is moving ahead with a plan to create a new center focused on translational medicine, presently called the National Center for the Advancement of Translational Sciences (NCATS) [1]. The strategy comes at a time of mounting frustration from researchers that the abundance of new information about the molecular basis of many diseases hasn’t led to the development of new therapies.
Health literacy is defined as the degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions [1]. Health literacy is important because it affects a individual’s ability to manage personal health: to navigate the healthcare system, share health history with healthcare providers, engage in self-care and manage chronic disease, and understand concepts such as probability and risk.
Most of us take everyday adult life for granted; we have a place to live, access to transportation and the opportunity to live independently. The same can most likely be said for those of us with adult children. The basics are covered. But what happens if you’re one of the millions of adults living with a developmental disability in this country? What if you’re the parent and caregiver to an adult child with a disability? How is your life different? Are the basics covered?
When people with disabilities turn 21, they and their families are no longer eligible for the services and supports provided by law through the school system. To determine how this affects them, Easter Seals — the nonprofit, community-based health agency dedicated to helping children and adults with disabilities attain greater independence — commissioned Harris Interactive to perform an online poll of adults with disabilities and their parents [1]. The primary goals of the study were to call attention to the challenges these people face, help service providers better respond to their needs, and heighten awareness of the needs of adults living with disabilities and their families.
