Archives for March 2008

Funding of Childhood Cancer, NF Research in Jeopardy

March 31, 2008 | by

Neurofibromatosis (NF) is a set of genetic disorders that can cause tumors to develop and grow along various types of nerves. The tumors may also affect the development of non-nervous system tissues such as skin and bone.

There are three types of NF tumors that result from mutation or loss of different tumor suppressor genes:

  • Neurofibromatosis type 1 (NF1) is the most frequent inherited cause of brain and nerve tumors. One in every 3,000 children is born with NF1, making it also one of the most common inherited human diseases worldwide. Enlargement and deformation of bones may also occur. Approximately 50% of people with NF1 also have learning disabilities. NF1 is caused by a mutation or loss of the tumor suppressor gene NF1.
  • Neurofibromatosis type 2 (NF2) is much rarer, occurring in one in 25,000 births. NF2 is characterized by the development of multiple tumors on the cranial and spinal nerves. The hallmark of NF2 is the formation of tumors that affect auditory nerves. Hearing loss beginning in the teens or early twenties is typically the first symptom of NF2. NF2 is caused by a mutation or loss of the tumor suppressor gene NF2.
  • Schwannomatosis is even rarer than NF2, affecting one in 40,000 individuals. SImilar to NF1 and NF2, Schwannomatosis tumors can develop on cranial, spinal and/or peripheral nerves. Although patients with Schwannomatosis do not have learning disabilities, they experience chronic pain and occasionally numbness, tingling and weakness. The candidate Schwannomatosis tumor suppressor gene is named INI1.

The Doctor’s Channel – A Media Snack for Doctors

March 28, 2008 | by

“Media snacking” is a term used to describe the consumption of small bits of information, data or entertainment. Social networks such as StumbleUpon, Facebook and del.icio.us, text and media sites such as Twitter and Pownce, Flickr … the list goes on and on. People that consume bite-sized media chunks, short web videos, RSS feeds and blogs are picking and choosing media that can be viewed quickly and easily. Today, it’s all about the packaging of information.

It’s all about being brief and succinct.

In today’s fast-paced, hectic world, everyone is busy, especially doctors. With patient visits, paperwork and meetings, doctors have little time to learn from each other and the healthcare community. The Doctor’s Channel, an internet TV site for doctors, is a time-saving tool that offers doctors an informative media snack, enabling them to learn about the latest news, ideas and information quickly.

The Doctors ChannelThe site offers 1 — 2 minute streaming videos offering rich, concise content delivered by doctors, as well as opinions and editorials. Doctors can film and post short videos pertaining to anything they think would be of interest to their peers, such as therapy approaches, surgical procedures, new drugs, etc. Further, users can register on the site and, like other social networks, join groups related to their interests. The site covers a total of 42 therapeutic specialties.

The Doctor’s Channel President David Best, MD, MBA, said [1]:

We started The Doctor’s Channel because it’s apparent that the traditional system of medical education isn’t working as well as it could. Watching a talking head for 15 minutes on a computer screen is a crushing bore. The world is media snacking, getting their information in short bursts from cell phones, podcasts and RSS feeds. We decided that the physician, who really does have precious few minutes a day, is the perfect audience for short, succinct educational streaming videos. Our goal is to provide an engaging, interesting way for doctors to learn that quickly gets to the point.

The Doctor’s Channel is just one of several websites that offer reputable video content that can be viewed by health consumers. Additional websites include:

  • icyou, a healthcare video community with hundreds health-oriented videos from certified medical and health professionals (as well as regular people)
  • Empowered Doctor, a health and medical news website that offers the latest news with short video stories.

These are excellent alternatives to using YouTube as a source of health misinformation.

Do you know of other reputable medical video content websites? Let me know!

Additional health and medical video resources are listed in the Highlight HEALTH Web Directory.

Reference

  1. The Doctor’s Channel Launches First Medical Site with Short Streaming Videos That Allow Doctors to Learn From Each Other and the Healthcare Community. PR Newswire. 2007 Aug 22.

Nirvana in the Right Hemisphere: A Stroke of Insight

March 19, 2008 | by

In January 2007, a meta-analysis published in the journal Neurology determined updated rates of the most common neurological disorders [1]. The review found that 183 out of every 100,000 people suffer a stroke each year. Most studies included in the analysis attributed 80% or more of all strokes to ischemia (meaning a localized deficiency of blood caused by a clot obstructing arterial flow). In contrast, the incidence of a hemorrhagic stroke (meaning bleeding in the brain) is much more rare and is associated with higher mortality rates. Indeed, a study of stroke incidence rates and case fatality in 15,792 middle-aged adults found that hemorrhagic strokes were 4.5 times as fatal as ischemic strokes [2].

Flat Funding of Biomedical Research: The Threat to America’s Health

March 13, 2008 | by

According to a report released earlier this week, five years of consecutive flat or below-inflation funding of the budget of the National Institutes of Health (NIH) is discouraging promising young researchers and endangering the future of America’s health [1]. The study warns that many of the brightest young minds are leaking out of the academic research pipeline because they no longer see a promising career in academic science. Indeed, America could lose a generation of promising researchers to other careers and other countries.

Diabetes 2.0

March 12, 2008 | by

This article was written by Matthew Krajewski.

March 25, 2008 will mark the American Diabetes Associations’ 20th annual American Diabetes Alert Day. As implied by “alert,” the day serves as a call to action for those individuals at risk to take the Association’s Diabetes Risk Test, and make an appointment with a healthcare provider if necessary.

Since 54 million Americans have pre-diabetes, it is crucial for those at risk to take heed from the American Diabetes Association’s Diabetes Alert Day. Those at risk include overweight individuals, those not leading an active lifestyle (not taking enough exercise), and those with a family history of diabetes. Furthermore, the American Diabetes Association recommends that people aged 45 and older be screened every three years (those at higher risk should seek screenings more regularly).

Since diabetes has no cure, affects nearly 20 million Americans (of these 6 million don’t know they have diabetes), and is the fifth leading cause of death by disease, the fear of testing positive for diabetes and the seemingly insurmountable lifestyle changes and health management requirements accompanying the disease can be quite daunting. Fortunately, the Web provides a wealth of information, and the interaction developments offered by Web 2.0 can make the quality of life of those living with diabetes a little better. With 5 — 10% of all Web searches being health related, the need for people to not only get health information, but also make it easy to access and interact with, is vital and reflects the evolving needs of Web users that Web 2.0 seeks to meet effectively.

searching-for-diabetes.jpgSites like RightHealth.com, Healia.com, Revolution Health or WebMD are excellent starting points to quickly get acquainted with the information surrounding the topic diabetes. Healia provides multi-dimensional filtered search results, whereas RightHealth algorithmically orders information from across the web and presents it in an easy-to-understand content format. Revolution Health, Web MD and RightHealth all blend the lines of information and community to offer multiple dimensions to getting information on diabetes.

From RightHealth, I learned a bulk of the facts I already mentioned in this posting, as well as what diabetes actually is: a life-long disease characterized by high blood sugar levels. The causes of diabetes can include too little insulin (the hormone the pancreas produces to manage blood sugar), a resistance to insulin, or a combination of both. Beyond this basic information, RightHealth also features easy-to-understand jump-offs to other sites, like Trusted Sources (organizations connected with diabetes that provide detailed information about the disease), and an Explore section that gives a snapshot of the language and topics used to understand diabetes.

So Health 2.0 makes getting or understanding information about dense topics easier, but that’s just the beginning. A new site, Mamaherb.com bills itself as a way ” … to find natural treatments that can really help,” by fostering a community where users share stories about what alternative treatment options have worked for them. For diabetes sufferers that want to explore homeopathic remedies, Mamaherb is an invaluable resource. A search on “diabetes” showed that people had moderate success with such natural remedies as bilberry juice, buckwheat tea, broccoli extract and buchu leaves. Where else could you get this type of deep information easily?

The key to better health for diabetics is better control over the disease by carefully monitoring their blood sugar levels. This might sound simple, but it can be surprisingly complex. Fortunately, there is Sugarstats.com, which provides an interface to, “track, monitor, and share [your] blood sugar levels and other key statistics to help manage your diabetes online.” With timelines and graphs, it becomes easier and more accessible for a diabetic to manage the trends in their blood sugar levels and target ways to reduce blood sugar levels.

The touchstone of Web 2.0 is the user. While there are the mega sites like Facebook and MySpace where one could find other diabetics to share stories and advice, there are also even more targeted community sites which serve specifically the health or diabetic communities. iMedix.com is a place where users can rate medical articles that have helped them (like Digg meets Health) and chat with other people that share similar interests. When I searched iMedix for “diabetes,” I was told that there were three people online who I could chat with and around 500 offline that also share an interest and want to talk about diabetes. Another valuable resource was icyou.com, where users post health videos, which was a great way to cut through non-health-related videos you might find on mega sites like YouTube.com. But perhaps the most valuable resource was tudiabetes.com, which is a rich and vibrant community site committed to those afflicted with or touched by diabetes.

With such resources available today with the advent of Health 2.0, and by extension Diabetes 2.0, living life with diabetes just got a little bit easier.

About the author: Matthew Krajewski is a writer for The Kosmix RightHealth Blog, which uses information obtained through the RightHealth search engine to provide insightful posts about health-related news and issues.

Additional Health 2.0, Patient Social Networks and Diabetes resources are listed in the Highlight HEALTH Web Directory.