The 2010 NF Conference – Connecting the Public with the Research

Neurofibromatosis (NF) encompasses a set of genetic disorders that cause benign and malignant tumors to grow along various types of nerves; it can also affect the development of bones and skin. There are three main types of NF tumors: neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. NF1 is the most frequent of the three; one in every 3,000 children is born with the disease.

The Children’s Tumor Foundation (CTF) is the leading non-governmental funder of scientific research into neurofibromatosis and has funded NF studies for over 25 years. Their goal is to¬†identify NF drug therapies and improve the lives of those living with the disorder. The Foundation also endeavors to increase public awareness of NF and provides resources for NF patients and their families.

2010 NF Conference

Biomedical Research Rock Stars

A new public service campaign called the Rock Stars of Science (ROCK S.O.S.) features eleven of America’s leading biomedical research scientists appearing alongside rock stars such as Joe Perry, Sheryl Crow, will.i.am, Seal and Josh Groban. The campaign is designed to increase public awareness of the researchers and their work while showcasing the need for increased science funding. Although biomedical research received additional funding earlier this year through the economic stimulus, continued investment is critical for the development of future advances. Indeed, just last year a report writing by a consortium of seven institutions warned that the flat funding of biomedical research was a threat to America’s health.

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The innovative campaign to bring attention to research is the brainchild of Meryl Comer, president of the Geoffrey Beene Gives Back Alzheimer’s Initiative, a philanthropic wing of the Geoffrey Beene menswear label, which donates all its net profits to support medical and educational research and outreach. Rock Stars of Science launched with a 6-page photo spread in the June issue of GQ Magazine, the popular men’s fashion magazine.

The print ad campaign is supported by the website www.rockstarsofscience.org, which will include behind-the-sciences videos and profile the scientists, their teams and research institutions. Readers will also be able to nominate their own Rock Stars of Science and sign a declaration calling for more funding in science research.