To the Edge of the Sky: the Fight to Save Children’s Lives and End Duchenne Muscular Dystrophy

New drugs are being developed to treat Duchenne Muscular Dystrophy — and many other rare diseases — but the treatments are stalled at the FDA. A new Kickstarter campaign is raising funds to complete a documentary about parents fighting to stop Duchenne Muscular Dystrophy and gain access to potentially life-saving drugs before the disease kills their children.

To the Edge of the Sky

23andMe Aims to Use Genetic Data to Develop Drugs

In a big shift of focus, the personal genomics company 23andMe recently announced the creation of a new therapeutics group with the intention of developing new therapies for both common and rare diseases.

23andMe

Nationwide Study Reports Shifts in Americans’ Use of Natural Products

A nationally representative survey shows that natural product use in the United States has shifted since 2007, with some products becoming more popular and some falling out of favor. Overall, natural products (dietary supplements other than vitamins and minerals) remain the most common complementary health approach.

Fish oil glucosamine chondroitin

kwiKBio Aims to Fast Track Research with Crowdsourcing Campaign

kwiKBio believes it’s taking too long to solve diseases and create cures. The company aims to combine advanced semantic web bioinformatics with contract research organization (CRO) business development in an e-commerce biomedical research portal. Think Wikipedia with an interactive research component coupled with Expedia for purchasing a ticket to a laboratory test.

kwikBio

Rare Disease Day 2015: How Rare Disease is Shaping the Future of Healthcare

Today is Rare Disease Day 2015, an international advocacy day to focus on the daily lives of patients, families and caregivers who are living with a rare disease. Rare disease communities have been responsible for the reinvention of many aspects of our healthcare system are truly paving the way for precision medicine.

We Are All Zebras