To the Edge of the Sky: the Fight to Save Children’s Lives and End Duchenne Muscular Dystrophy

New drugs are being developed to treat Duchenne Muscular Dystrophy — and many other rare diseases — but the treatments are stalled at the FDA. A new Kickstarter campaign is raising funds to complete a documentary about parents fighting to stop Duchenne Muscular Dystrophy and gain access to potentially life-saving drugs before the disease kills their children.

To the Edge of the Sky

23andMe Aims to Use Genetic Data to Develop Drugs

In a big shift of focus, the personal genomics company 23andMe recently announced the creation of a new therapeutics group with the intention of developing new therapies for both common and rare diseases.


kwiKBio Aims to Fast Track Research with Crowdsourcing Campaign

kwiKBio believes it’s taking too long to solve diseases and create cures. The company aims to combine advanced semantic web bioinformatics with contract research organization (CRO) business development in an e-commerce biomedical research portal. Think Wikipedia with an interactive research component coupled with Expedia for purchasing a ticket to a laboratory test.


The Project Data Sphere Initiative

Billions of dollars are spent every year by pharma companies researching and testing new cancer treatments. Although there is a wealth of valuable, historical cancer clinical trial data, it’s not available. The Project Data Sphere initiative aims to change that because large pools of data can, and should, be put to use.

Project data sphere initiative

New Stanford Institute to Focus on Bad Science

A new institute will launch late this month at Stanford. The Meta-Research Innovation Centre (METRICS) aims to monitor scientific publishers’ work by identifying and minimizing persistent threats to biomedical/scientific research quality.

Stanford Meta-research Innovation Centre